We Desperately Need More Accountability From NIH | Opinion
2 years ago
ADAM ANDRZEJEWSKI , CEO AND FOUNDER, OPENTHEBOOKS.COM
The National Institutes of Health (NIH) has received more scrutiny of its activities over the past two years than perhaps ever before. Yet its leadership consistently fails or refuses to answer the call for transparency. This time, NIH leadership is fighting to keep secret hundreds of millions of dollars in private royalty payments pocketed by the agency and its bench of scientists. Americans deserve some sunlight on what appears to be a potentially enormous conflict of interest.
The NIH distributes roughly $32 billion in research grants to 56,000 recipients in the medical community each year. Those taxpayer dollars lend quite a bit of clout. But there’s money traveling in the other direction, too, when NIH-backed work is utilized by private companies. We know precious little about it, but over just five sample years, it amounted to a whopping $134 million, spread over 22,000 payments to nearly 1,700 scientists. Each and every one is a potential conflict of interest.
An obscure 1980 statute sponsored by Senators Bob Dole (R-KS) and Birch Bayh (D-IN) updated U.S. patent law, allowing for these government scientists to be credited as “co-inventors” on medical products and qualifying them for royalty payments. The payments last had a public look in 2005, when the Associated Press found some 918 scientists receiving $9 million. That group included current and recent leadership such as Dr. Anthony Fauci, his deputy Clifford Lane and previous NIH Director Francis Collins.
But since then, NIH has become much more secretive, as the payments skyrocketed.
When our organization, OpenTheBooks.com, discovered the royalties were still obscured from public view, we filed a Freedom of Information Act request for a decade’s worth of line-by-line payments, which NIH summarily ignored. We sued and, after a protracted fight, the Beltway health care behemoth admitted it had 3,000 pages of responsive documents. Thus far, NIH has disclosed 1,200 pages, beginning with the earliest transactions in our request (fiscal years 2010 through 2014).
To recap, the NIH used public dollars to dole out grants, received nine figures’ worth of private royalties for the results of the taxpayer-funded research and then used more taxpayer dollars to fight key disclosures in court.
Most disappointing, the paperwork is so redacted as to be of little use.
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